7 comments on “Pathological Demand Avoidance syndrome and Self-harm

  1. Praying for you in this situation. I know of PDA and how hard it is, we believe our daughter has it. Pls join PDA facebook pages…the global one and the adults one. You will find lots of support no matter what country you are from. X

  2. You are so brave sharing your deepest thoughts on here. I hope you can find the support you long for. My son has PDA he can’t talk to me about what’s going on I hope I never make him feel like I’m controlling his life with no say. Thank you for sharing don’t give up. Have you tried another doctor you never know they might understand you better. You have articulated your thoughts in this blog very well, have you ever considered writing this stuff down and giving it to health professionals it might save you feeling so anxious about talking about it and gives you a chance to think about what you want to say to them before being asked auquard questions. Good luck getting the help you need I will say again never give up x

  3. PDA is an emerging condition that many parents and clinicians are fighting to get recognised. Even in the UK it is only diagnosed in a handful of areas, support and help is hard fought for but we do have an online PDA community that supports and helps each other. My daughter is ten and she is diagnosed with PDA and making steady progress. Your posts are extremely informative and very useful for parents to better understand their children. There is a facebook adult support group run by a good friend of mine who is a 31 year old female with a diagnosis of PDA. There is a PDA online community where you can have a sense of belonging. Here is a link for the adult group in case it is of any use to you. https://www.facebook.com/groups/AdultPDASupportNetwork/ it would be great for you to come and join our community unless, of course, you already have. You may find a post written by daughter resonates with you, I know that she is only ten but she is trying in her own little way to spread awareness. Of course since doing these posts the demand avoidance has taken over and so I don’t when the next one will be, probably when she is 21 😉
    http://understandingpda.com/category/mollies-mini-posts/

  4. Reblogged this on Pathological Demand Avoidance Syndrome an autism spectrum disorder and commented:
    Please take the time to read this really informative post written by an adult on what it actually feels like to have PDA. The only way that we can really help our children is by truly stepping inside their minds. I don’t know who the author of this article is but I hope that she finds her way to our PDA community if she hasn’t done so already.

  5. Hi. 🙂
    Just read this following Jane’s re-blog
    above…and just wanted to say thank-you!!
    You start your post with “Imagine if…”
    and your powerful writing style really did help me to imagine. Imagining living with PDA can never be the same as living with PDA…but I feel like I’ve taken a step closer to understanding my son, so again, THANK-YOU!! xx

  6. Thank you so much for sharing your thoughts. Thank you for being brave enough to write it all down. It means a lot, to so many people.

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